View Single Post
Old 04-15-2012, 11:08 AM
Senjuro2 Senjuro2 is offline
Junior Member
 
Join Date: Apr 2012
Location: Orlando
Posts: 6
10 yr Member
Senjuro2 Senjuro2 is offline
Junior Member
 
Join Date: Apr 2012
Location: Orlando
Posts: 6
10 yr Member
Default Cidp

Quote:
Originally Posted by LizaJane View Post
My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.

Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)

After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!

Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.

And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.

It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.
Is there a thread on this site for CIDP specifically? My Peripheral Neurologist told me that I do infact have Chronic Inflammatory Demylenating (sp?) Polyneuropathy. I did however have yet another Peripheral Neurologist tell me otherwise. I, however do believe that it is CIDP because it's getting worse as the years pass by. I've never heard of Sjogren's Picture before, though, I'll need to look that up.
Senjuro2 is offline   Reply With QuoteReply With Quote