Thread: out to pasture
View Single Post
Old 04-15-2012, 11:14 AM
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
Default

I am in the opposite position of you. Treated aggressively since diagnoses.

Prenisone, cellcept, mestinon and IGIV with only a reduction in pred. Now down to 30 ml. eod.

My Neuro considers me stabilized since the last time I crashed in Dec. 2010 but I still have good days and bad and my bad days seem to be getting worse. I am wondering if it is my disease or side effects from the drugs? Or maybe just getting older?

I see my Neuro on Tuesday and I am going to ask him about a reduction in treatment.

Beside having this disease, I think we all have the same problem.

Too many questions. Not enough answers.

Tony
scrubbs is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
pingpongman (04-15-2012)