hi
Ride-on l had a great birthday. But l had a terrible sleep that night. I had 2 glasses of champagne. During the night l woke and my heart was pounding so hard, l thought it was going to jump out of my chest and l had hot feet again and hands. But then on Sat night l went out to dinner at friends, and l had 3 glasses of white wine, and l was fine that night. Go figure. I am not as anxious now as when all this started 2 weeks ago, so l am getting there. Probably also because l am seeing Neuro on Wed and l know its not to far now to actually see if l have PN or not.

Dr Smith, l do keep a diary and have so for quiet some time, since l had my dizziness episodes. You were saying 30% of patients the cause cannot be found. Wifes neuro told me the opposite she said that 70% of patience the cause of PN cannot be found. So now l am completely confused.

Also you were saying to treat the symptom, but if the cause can be found, you can then treat the cause of your PN?
I also don't blame the doctors entirely.


mrsD-l guess when you first find out you have PN, you need to rely on somebody,and that someone is the doctor. If l didn't have this appointment coming on Wed, l think l would break down. I need to think, that there is hope, and that he may be able to help me. Like you said there is always research being conducted to find out more about this, so we have to at least hope they find something, and then put our trust in them. Otherwise what is the point of going to them in the first place. My neuro, is the only one who can probably diagnose me, so l have to trust him. The thing l dislike about doctors is they are so quick to give meds. I am not one for meds and usually have to be in immense pain to take any kind of meds. I am not saying Natural is always the best either, as l have adverse reactions to natural vitamins and minerals as well. I think diet and lifestyle are the main things we should look at. Which l have done most of the time, but have let loose here and there, and probably pushed my body too hard at times. i have learnt so much from all of you, and l suppose l won't stop learning. Its not always easy to find time, with twin girls, but l need to do this for myself and my family. I have been a pain for them in the first few days of this, but now l am back to normal, l still have it in my mind all day and night, but l am more calm. This has definitely made me more aware of my drinking and eating habits. As l have suffered with a bit of an eating issue all my life and that will too much wine, the body can only take so much. My body is probably nutrient deficient, and wine would make it even worse. So now l am eating regularly and more food in general. i don't care if l gain some weight, l just want to be healthy again. I have been slim all my life, but l have had to go hungry most of the time. Most people comment on my figure and say l look great, but at what cost? I may have ruined my health, for vanity. Just not worth it. So now l am trying to eat breakfast and lunch and dinner each day, even if l not hungry, so l can try and get more different foods in my daily diet. I want to eat more beans, legumes, sweet potato and seeds, and more yogurt as l don't eat enough of these kinds of foods. I usually just stick to protein and veggies, in one meal per day. Done this for years and ran 3-4 times per week. Many times l was starving but didn't eat. My body is trying to tell me something, and this has been my wake up call. Not to mention the message l was sending my girls. I did eat more on weekends but still waited till 5pm to eat each day. Not normal is it? Scared to eat that was my problem.

I feel much better now, my symptoms have settled down. If they stay like this forever, l can live quiet happily. I can only think for today, and not worry too much about tomorrow, as long as l keep clean living and eat healthy and not drink too much and stress l think l will be fine.

Thanks again, you are fantastic, l love this forum so much. This has really helped me regain control.

Sue