Remember that just because you are diagnosed at a world-class facility doesn't mean there is a cure or treatment. They are simply more likely to pinpoint the problem. This is still not always possible, and many neuropathies, like mine, do not have treatments. One treats the symptoms not because one's doctors are incompetent but because that is all that can be done and it does improve one's quality of life.
I was sent to Johns Hopkins for extensive testing and a second opinion. They found nothing different than my primary neurologist, she just wanted to be sure since I was 47 and losing ground. Chasing a diagnosis at a big name facility is probably not the best use of one's resources, although a second opinion is always in order. I just happen to live within an hour of Hopkins.