Hi Hampster,
All the responses made to you are excellant. I thought to add my own.
My daughter has CRPS. As her advocate/ researcher in addition to the
very helpful responses made by other members, we were also led to Dr.
Fugedy in Altanta. Since my daughter could not travel by her self and
we were a great distance from Dr. Fugedy's practice it was a major feat
just to find a time when we could go so the appointment was made for the
first week in April. I had hoped by this time I would be posting wheather
she was a responder or non responder.
As someone said the best laid plans of mice and men often go astary. Three
weeks before the target date our family suffered illiness of others in other
states, and the same month the death of another family member so it was
necessary to post phone the treatment date. Doc Fugedy's office says they
can usually get another appointment quite soon but we are still dealing with
uncertainties regarding an ill family member so it will be awhile before we can reschedule.
That said, for my family and others like our situation I think going the route
of someone like Doc Fugedy is the best option and the experience I have had
thus far suggests he is a capable and caring doctor. I do have one regret due to the time line. I did a lot of research education wise and
some learning about TDCS but since we were going to the Doc in April I did
little other research. I regret that, we were surprised when my daughters
PM doc said he would write a script.
Suffice it to say while going to visit Doc Fugedy is not off the table in the
least, I have nevertheless put myself in action mode. I had began a search
for the protocals since we do not know what other delays we might face.
While my perference is for a visit with Doc Fugedy I am also getting ready
and it may be my daughter might join the ranks of home use. I have already
obtained the protocals used at the study in Beth Isreal. I have found getting
hold of one study serves to explain so many things. So much research on TDCS felt like being in a sea of info but reading the full text of the docs who
did the study is extremely helpful.
Regarless, of the route we take we will keep everyone posted. You TDCS
users and posters are my families hero's. You fill me with inspiration and
courage. Good luck to everyone.
Joydee