Hi
I just found NeuroTalk recently and have found it very helpful. I was diagnosed with RSD/CRPS about 3 years ago. My main area of pain is my left neck, arm and hand but to be honest, I hurt everywhere. I had 27 stellate ganglion blocks before having the Medtronic SCS implanted last June. It worked great at first, giving me about a 30% pain reduction but now it's probably about 5-10%. I don't know what to do about the SCS...leave it in for the battery life (5 yrs) or have it taken out sooner. Since I am not having any problems with it, I might just leave it in....the airport pat downs have been amusing, lol!
This condition sucks....no one understands what it is like to be in pain ALL. THE. TIME. I have tried cymbalta, lyrica, neurontin, acupuncture, talk therapy, pain meds, experimental blocks (Botox)
I try to keep busy but mostly I don't leave the house or only plan one thing per day so that I don't have to keep canceling on people....
I just had a new CT scan of my neck to see if there have been any changes in there....is there any treatments that I am missing? Any help or suggestions would be appreciated....
Lisa