Originally Posted by nospam

I had a numbness in my face behind my eyes to my mouth. However, this was directly related to horrible muscle spasms in the neck and head with accompanying occipital neuralgia and TMJ pain. The theory was that my neck tension led to compression of the occipital nerve which led to head tension and compression of the cranial nerve which lead to the face stuff. I'm just glad its under control now but I did get a full workup (MRI of brain and C-Spine) to make sure it wasn't anything emergent.

How far is the drive to Cleveland for you? I believe they have good TOS expertise at the Cleveland Clinic. I think flying to California (especially for Dr. Filler) will be a waste of time for you. You have a very complex case and Filler is not equipped for these IMO. Here would be my recommendations for you to look into:

Cleveland Clinic: Dr. Daniel Clair
St. Louis: Dr. Thompson
Denver: Dr. Brantigan (there is a Dr. Annest there as well)
Massachussets: Dr. Dean Donahue
Maryland: Dr. Julie Ann Freischlag