Well l am from Australia, and l really know that the Perth hospital have some kind of expertise in NP. But if l knew l would get better diagnosis in US, l would definitely go there.

The icing, sounds very scary.

Hope it never, ever comes to that.

MrsD, you are fortunate you found the cause. My thyroid was found normal today. So l wonder wha is causing this. Probably autoimmune problems of some kind.
Have buzzing in head at the moment. Ahhh, it just never ends.

Sue