I was diagnosed 12/11 for stiff person syndrome, MS and Lupus after anti GAD, lumbar puncture, etc etc.Symptoms for years but never taken seriously by family practice dr. until my body literally went into acute distress. How do I know which disease is causing what? On copaxone, monthly Carimune IVIG from which I have adverse side effects. My medical bills are outrageous and just applied for SSI. I travel 9 hours to seek treatment from a neurologist. Emergency room visits have been humiliating and horrific. last week I was yelled at at ER for not being able to keep my body still during a painful spasm attack. ER doctor said he never heard of stiff person syndrome, pinched my legs while I begged him to stop. Anyone drug sensitive to IVIG and Copaxone?
don't know what's worse , my debilitating side effects or diseases. neurologist recommending plasma exachange next. If anyone can suggest anyhing, I would be so grateful.