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Old 04-18-2012, 02:28 AM
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mrsD mrsD is offline
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Join Date: Aug 2006
Location: Great Lakes
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mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Your experience is about typical. Not one smidge of effort to find out what is happening to you. Typical.

Surely he does not think you have CMT?
http://emedicine.medscape.com/articl...overview#a0101
This presents in children:
Quote:
United States

The prevalence of Charcot-Marie-Tooth (CMT) disease is 1 person per 2500 population, or about 125,000 people in the United States. The incidence of CMT type 1 is 15 persons per 100,000 population; the incidence of CMT type 1A is 10.5 persons per 100,000 population, or 70% of CMT type 1. The incidence of CMT type 2 is 7 persons per 100,000 population. Persons with CMT X represent at least 10-20% of people with the CMT syndrome.
International

In Japan, the prevalence is reported to be 10.8 cases per 100,000 population; in Italy, it is reported to be 17.5 cases per 100,000 population; and in Spain, it is 28.2 cases per 100,000 population.[18, 19]
PN in twelve year olds... that is appalling if not hereditary.
(not everyone has hereditary PN --as a 12 yr old might have)
Hereditary PN is not the most common cause, but only one of many.

Looks like you have a "winner" there, (not).
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Last edited by mrsD; 04-18-2012 at 03:12 AM.
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