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Old 04-19-2012, 09:23 AM
GraceInTheRain GraceInTheRain is offline
Junior Member
 
Join Date: Apr 2012
Posts: 7
10 yr Member
GraceInTheRain GraceInTheRain is offline
Junior Member
 
Join Date: Apr 2012
Posts: 7
10 yr Member
Default Recovering From TBI syptoms .



As per one of the welcome team's suggestion, I copied/pasted my "new member' post here.
I really wish I had known about your guys earlier, right after my accidents.
I only konw a couple folks with TBIS's, and frankly, my level of affliction is no where NEAR theirs', and who can complain about a high wind thunderstorm when the person wiht antoher TBI suffered a Tsunami??
SO. Here I am, Here's My Intro, and I'm looking forward to having a conversation with others who are dealing with the same issues. !!!


Hi....!
I just found your forum last night and am so glad I did!
Wish I had known about it months ago.
In Feb. 2010 I had a rollover accident and was hospitalized for 2-3 days and a couple months later entered a fantastic mTBI outppatient program to help me deal with the vision issues, cognitive issues and the psychological component.
I saw a Speech Pathologist, an Occupational Therapist and a NeuroPsycholgist PH.d for several months when I had ANOTHER HEAD Injury.

I was on a steep flight of old stairs and fell. *I have amnesia for that entire day, so if it weren't for a witness, I would have no idea*.
i was unconscious for several hours and ultimately had to be air lifted to the nearest large hospital where I spent 4 days.
Then I went to one of ***THE BEST*** Rehabilitation Hospitals in the Region .
I was there for a month.

Now I'm dealing with all the residual symptoms of TBI.
Debilitating Chronic Daily Headache, Retractable Migraine, Vision, Hyperacusis and Light Sensitivity, ((Actually I developed a SensoryModulation Disorder in general))
Dizzy Spells (not too bad) Tinnitus **I hear both Buzzing and MUSIC in my Ears**
and There's Cognitive Deficits as Well.

If there's ONE THING I can say with absolute conviction is I am So Incredibly LUCKY AND BLESSED.
Some of the patients at the Rehab hospital were so severely and profoundly traumatized that I find it difficult to complain.

So.....a Little about me.
I'm 50, **how the HELL did THAT happen??** LOL
Have had 4 children, live in a small where I have what I call the "sweet cottage on the prairie'.
a Double Lot on the Corner, Surrounded by the Quintessential White Picket Fence.

I haven't been released to go back to work as of yet; my attorney urged me to apply for SSD.
Next Friday I have an appointment set up by SS for a Neuro Psych Exam and I am a bit concerned after reading/hearing that the 'whole shebang' can be a set up for denial.
(((Like If I answer honestly about pain and mood, It could look like I'm malingering)) and if I do poorly on certain areas, the tester could REMOVE the data that shows I'm impaired.

I am hoping the psychologist is Ethical and there is "no such arrangement' set up between him and the department.

Am on a LIST of medications -----and recently had 25 botox injections from my neurologist to try and curtail the migraines.
Right now all I see is most of my neck muscles are parlized, so I can't lift my head if I look down, haha.....My big ole heavy head has two positions. chin to chest and Up.
And if I want to lift it up after looking down at the floor, I have to use my hands to guide.
weird.

Well, It's taken me several sittings to get this comprised.
My attention span and vision headaches prevent me from doing too much in one sitting.
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"Thanks for this!" says:
Lightrail11 (04-19-2012)