Also, the unpredicability of fatigue makes it so difficult to have definite plans throughout the week. I have been thinking about volunteering at the hospital or library, just to get out of this house and interact with other humans.
But if I have "one of those days", there is no way that I would be able to function. Now, when fatigue hits, I can barely walk, let alone think coherently.

It bites, it really does. This is when the victim mentality kicks in...that is so hard to keep at bay.

I don't bother calling the neuro about it...they just ask, are you sick? do you have a UTI? a cold? They can't do anything about it anyway.

I WANT MY LIFE BACK!!