I am so very sorry to hear how you are suffering.

My only suggestion would be to look into tDCS treatment. There is a thread on here about it and it has worked miracles for several people. One member, CRPSjames, had a failed SCS and got much worse from the SCS. He started treating with SCS and he has had some remarkable success. He has posted about his success in the tDCS thread. He also has a post in the last few pages (I think) of the Introductions thread stickied at the top of the forum. I highly recommend reading through the entire tDCS thread. It filled me with a lot of hope. I have been treating at home with tDCS for almost 2 months now and I too have seen some major improvements in the pain levels, sensitivity, sleep, and in the length and severity of flares.

I hope you are able to find some relief soon. Take care and keep us posted on how you are doing.