|
Senior Member
|
|
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
|
|
Senior Member
Join Date: Jul 2009
Location: Michigan
Posts: 1,474
|
Read this on the ADPA site
My husband has PD that was first diagnosed in 1994 when he was 45. After years of taking every type of PD med available, he was chosen as a candidate for the Duodopa study. He is currently the only study participant in the state of Colorado. I will say that getting the meds in a gel form throughout the day does make his "on and off" times remain at a minimum. Until recent back surgery, my husband was a very active individual (hiking, team sports, etc.) and this helped him remain so. If there is a complaint, it is the design of the pump and the tubing used during this trial stage. Sometimes very cumbersome and the tubing often gets kinked or disconnected, which requires minor surgery to put back in place. As a caregiver, I sometimes find it a pain to maintain on occasion, but my husband still swears that it's 10X better than all those pills. We understand that the final product will be significantly streamlined from this study version.
Suzanne M., Colorado, Jul 28, 2011
|