There is truly no reason to have surgery for a tethered cord. I have had it twice and it keeps tethering again and the more surgery you have the more likely you are to get arachnoiditis or tarlov cysts. It's not worth it to have it untethered.

I wish you luck and prayers for you. I am in the same position. Taking everything one day at a time and enjoy every moment I can because I can't take it all in at one time if I do it's entirely too much for me to handle mentally/emotionally.