Sorry to read that you have had so much happen. I have a friend that had the same kind of thing. He did have the lumbar puncture proceedure. I looked it up too, and it was mentioned as one of the possible things to try besides surgery. Rather than all your symptoms, maybe talking to the neuro and asking about this would give you some comfort and hope. With my own conditions, I am reaching out for help too, even though I am not sure it will work. I am at least asking about it. I wish you the best. ginnie