I've never used a site like this before. I'm not sure where to start. I have TOS. I was diagnosed by Dr. Dean Donahue at Mass General. He is wonderful! However I live in Indiana and cannot drive 17hrs every time I need to see him. I am now talking to the Thoracic Outlet Syndrome Center in St Louis, MO. My first appointment with them is May 30th. Anyone know anything about them?

I have been working with a Chiropractor who has a masseuse on staff. They have been amazing. I can function again. I was able to do this instead of the botox treatments. Not a fan of those! However my chiro and I believe we have come as far as we can on that front, and I am now thinking surgery will be necessary. I'm very scared. I have not been able to find enough info on what happens after surgery.....

I'm so glad I found this community.

Jess