Hi Mariel

I have idiopathic thrombocytopenia purpura - it was identified during my first pregnancy (which was 19 years ago - long before MS came to visit - and didn't go home).

My options as far as I know, are 'roids, or removing my spleen (though that is not necessarily a guarantee of fixing it). I have seen a few haematologists over time. When I had my craniotomy, they put me on massive steroids because they kept crashing in the lead up to surgery (out of spite I am sure, because I wasn't scared enough already ).

I am very grateful that they are as high as 90 now. That doesn't cause me any real dramas - other than a few extra bruises and nose bleeds.

It is really interesting that the autoimmune disorder (is porphyria autoimmune????) range is so diverse.

I really hope that p32 works for you. I can only imagine that the reverse of what I have is just as bad - if not worse.

Regards

Lyn