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Old 04-24-2012, 08:35 PM
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default debi

if i'm asking the impossible or the unreasonable please explain. tks

PS..if one only looks at the cost of administering a test (such as a collecting DNA samples) it doesn’t provide a full view of what is needed to capitalize on the information. While sobering, it is important to view putting all the pieces in place to get useful outcomes. Who will establish the protocols, who will build the infrastructure for collection, who will orchestrate sharing, who will manage questions, who will protect data, who will build networks to find patients, who will pay to analyze data? This list goes on and on taking me back to my first statement science is complex.

We are idea generators and I wish I was paid a fraction of your salary but not a factor. Lol

The factor is you are good at it and have courage and an open mind. The money would come from you, google, and grove, 23andme. NETRP and all of the orgs And last but not least the NIH. Hpw does this compare to getting a drug through the pipeline which in some cases is close to a billion dollars. The only reliable results are from the preclincal work.

I’m asking if it’s possible and could it change the world ? That’s the goal of 23andme.

I realize u have to mine the data.but what data that would be Would also be great to go global but maybe not until it gets going, there wil be plenty of patients to help and recruit for other trials. NEEDLES TO SAY, IT NEEDS TO GO GLOBAL.

the burning question: could this find a cause and a cure ? especially if you also continue PPMI as it is.Can we really go for it and check everything? we need our own lab.


could the price tag be reached?
please crunch some numbers and give it some thought.
Kinetics and u of kentucky and andy grove could work on small molecules and delivery systems and pharmas who stand to make big money could donate and pledge to stick with it;pharmas could have a field day and ole isaacson and others need to perfect skin cells and others. a moral disagreement wil just slow it up. maybe the pig cells will work. i know there are thousands of reserachers but are the academics producing?


Twocents but it could multiply. Can there be stock?can it be incorporated? we are all in this together, we stay hopeful because we have each other.so that bond needs to be --relayed to doctors and orgs. i can't wait for the book to come out.it can make a great display along with foxfinder materials.

There are many nueros. i am requesting reimbrsement for gas; it;s just not in my disability income to drive around the state but i'll give it my all as energy pemits. mY neuro moved to 1st Choice and is on a few tv commercials. they descibe him as a movement disorder specialist and he did a commercial about just parkinson. he listed all motor symptoms - nothing cognitive or mental.'missed half of the problem.

sigh [makes me tired just to think of the ways to see the urgency and deal with it urgently.

what you see on the outside is usually [hopefully] better than you feel. the inside is slowed up and we get constipation [impactment]. slow, hot pee that can lead to frequent urinary traft infection. this kills people and should be listed the pd was what cause the death.

0k i didn't kick on with energy till bout 2:30 -time to listen to music and clean. is dancing with the stars- on tonight. i finally got hooked on it,

sorry so long.we are alll in this together. we must be agressive but patient. not easy for us as we suffer year after year. what makes us calm not is urgency and weed out the the frivolouus science. it testing our whole genome would do as much as we think it have the elusive targets.

last sentence: of u think it will come to testing the full genome anyway then can we do it now rather than later ? many illnesses could test their own.

ok done.
__________________
paula

"Time is not neutral for those who have pd or for those who will get it."

Last edited by paula_w; 04-25-2012 at 06:59 PM. Reason: just cleaning it up
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