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Member
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Join Date: Sep 2006
Location: Australia
Posts: 660
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Member
Join Date: Sep 2006
Location: Australia
Posts: 660
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Me too - I totally understand what you are saying.
Most of us have a 'cocktail' of ailments. My husband hates it when I lie and tell people I am fine (him too) - when I am seriously not fine - but, the hard reality is, that no matter how supportive people are, they get plain bored if you say you feel like cr@p too often.
What makes it even harder is the 'invisibility' of this disease. If I had a cast on my leg, people would understand and make allowances if my leg hurts and I limp - but I don't have a cast, so it doesn't seem like a real thing to them because they can't see it.
Bottom line is, this is human nature and although it sucks, the only ones who understand are those in the same (or similar) boat.
Lyn
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Lyn .
Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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