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Old 04-25-2012, 10:39 AM
Rae Lyn Rae Lyn is offline
Junior Member
 
Join Date: Apr 2012
Posts: 8
10 yr Member
Rae Lyn Rae Lyn is offline
Junior Member
 
Join Date: Apr 2012
Posts: 8
10 yr Member
Default trigeminal neuralgia

Quote:
Originally Posted by ibdvine View Post
I have had a (constant) strange sensation in the left side of my face for a little over a year now. I am a 28 year old(f) and i did have a cavity of the left lower jaw that was drilled also over a year ago. The dentist that i had at the time was pretty ruff and i think he may have drilled into and damaged a nerve? not sure. This feeling feels like tightness and pressure and slight muscle weakness although i have full use of my face. I can feel it in my cheek, around my eye, forehead, chin and left side of neck( all on the left side). I feel my face has become slightly less symmetrical but no one else seems to see a change.

I have had an MRI which was normal and i have seen 4 neuros. 2 of the neuros think i have a form of trigeminal neuralgia that is uncomfortable rather than severely painful. I do not think i have tri- gem but i of course cant say for sure. This feeling is CONSTANT- the only time i do not notice it is when im asleep.

I have tried acupuncture, massage therapy, physical therapy w/ electro stim( this felt good but the feeling never went away completely) and now i have been seeing a chiropractor. I have also seen other dentists and now wear a nightgaurd every night to protect against occasional grinding/tmj.- I can open my mouth fully, no cracking etc- but apparently i do clench my jaw when sleeping.

I did try to ignore this feeling for 4 months before i tried to find treatment- I was convinced i was just sleeping on the left side of my face all night and thats why it felt like my face was always pressing against a table. Trying all these different treatments is just very expensive and nothing seems to be really resolving it. I can feel in that side of my face so there is no loss of sensation/ total numbness. I know it could be worse and i could be in constant pain but this is still feeling is still very uncomfortable.

Whats most frustrating is that i don't know whats causing it and every time i go to an MD they talk about things like MS, brain tumors, perry romberge and other terrible conditions while i think there is a good chance this may not even be neurological( i.e nerve damage?).

Anyway im considering trying thermographic imaging( for tmj, and the face?). I want to try what i can instead of ignoring this feeling. The fact that it may be permanent is very upsetting to me.

Thanks for letting me share! I hope me posting here isn't at all disrespectful to those who have severely painful conditions. I am just trying to seek knowledge and information outside the MDs office!

Hope everyone feels better soon( in a perfect world we all would!


I know the feeling you are talking about. I bet it hurts to smile. My whole life I have had head, face, and ear pain. I was sent to ent, dentist,(had all 4 wisdom teeth pulled trying to relive pain) went to the dentist for tmj. Most the time drs said it was sinus trouble. Finally I went to a neurologist. The neurologist waved paper on my left side of my face and it did not bother me the she waved it on the right side of my face and I almost hit her. It sounds like Trigeminal neuralgia. You may have a hard time getting a doctor to consider Trigeminal neuralgia due to your age. Even after my nero dr diagnosed me my primary dr had did not believe it because I was only 32 years old. I remember the cheek pain then the jaw pain then the head pain. Sometimes it would burn and I would put ice on it. I would not waste any money on the dentist until I saw a neurologist if I was you. If you have any questions I will be happy to talk with you about trigeminal neuralgia.
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