ME ME ME !!!

I had bad ON in December in both eyes, and went blind. I have had rotating headaches ever since.

I get visual migraines first (like someone came out of nowhere and took a huge flash photo of me, then sent me from the bright sunny yard, into the dark house.) its awful! cant use electronics to read, watch TV, or even read paper books.

Next is an actual migraine. one sided head pain, nausea, cant think, cant function, just want to lay down and cover my head.

followed finally by a tension headache.

Now I dont have a headache 24 hours a day. Most days I wake up and say Hurray! no headache! then...I lift my head and let the games begin. Will have a visual migraine for about 2 to 3 hours (15 minutes in normal for most folks) then I get a break for about an hour or two and an actual migraine will begin. ( i swear, they are cluster head aches, not migraines) and after I finally get it calmed My head and neck are so tight from holding them in strange positions to find releif, that a tension headache will take over. This rotates from day to day to day.

Neuro says its migraines, and cluster headaches. If you are worried. Look in the mirror. SMILE. nice and big. Are both sides of your mouth curled up the same? frown, the same? squeeze your eyes tight shut. pull up on your eye brow. Can you force that eye open? squeeze a ball or a rolled up cloth. Does it feel the same on both sides?

Please see your neuro. There are meds they can give you to prevent migraines in the first place if you are having more than 3 per week. My neuro said they can be triggered from meds, foods, having your hair in a pony tail too tight for too long, or stress. Im still trying to find the right meds for me.

btw, he said this type of cycle is common after a bad case of ON. it takes time for the optic nerve to heal, and the brain can go into electrical storms to try to heal itself.