Senior Member
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Join Date: Nov 2011
Location: Boston
Posts: 1,105
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Senior Member
Join Date: Nov 2011
Location: Boston
Posts: 1,105
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Here's the thing w the DMD's and the RRMS: The companies that make the drugs need a definable outcome. They need people w records that say they had, for instance, 3 exacerbations last year and 1 on their drug.
It's harder to get those definable results in chronic progressive or 2nd progressive.
Many of us who haven't had an exacerbation in many years are getting them anyway, I believe.
Those "support group" members should take their complaints to the drug companies and those that fund studies rather than to other MS'ers.
JMO,
ANN
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