Sue, It is hard to know for sure. POTS is caused by a lot of triggers. Car accidents, surgery, or sometimes hormones at puberty. Lot of young girls have it happen then and lose their childhood. No school, friends, etv.

I think sugery and/or antibiotics triggered it for me. With CFS, I had a good chance of getting it. A lot of people with CFS get Orthostatic Intolerance problems.

I was diagnosed with NP with symptoms and a couple of tests, no punch test or anything like that. It fell into place also with the Autonomic Neuropathy.

For ME, POTS is worse since I am better with my PN. It would depend on your case of POTS and PN. POTS is a breakdown of every system. The body does not work. No temperature regulation, digestion problems, terrible dizziness and lightheadedness on a scale that is hard to believe. I could not move my head at first.

The NP didn't move to my hands. My feet did burn, tingle and felt like I had socks on and had a lack of feeling. Not numb really, I could feel, but not normal at all.

A lot of people with POTS or "just" Dysautonomia have digestion problems. That is a huge problem for many. Swallowing, bloating, nausea etc. I had that all for a long time. Nausea 24 hours a day. I had to have a cold pack on my stomach at all times.

Again, the supplements were what I needed for the nerves. The sad thing is I have not seen another POTSY that gets this information from her doctor. VERY sad. I try to help them at least learn about the possiblities.

Many are in the hospital all the time. Many faint multiple times a day. I always made sure I had my wheelchair close by. Or usually I was IN it.

Many of them have LOW bp, so that is another problem that often goes with POTS. My BP was HIGH, then high/normal and now normal and sometimes low.

Sally