I started at teaching hospital, and have stayed at one. My first surgeon dropped me after I told him to basically go screw himself because he forgot I had connective tissue disorder and repeatedly refused to do a thing. I had to hurry and find a new surgeon and I did but had to have two surgeries within a week, I'm only a month and half out and the hospital I usually go through claims it's something I can live with

I can't stand/sit for longer than 20 minutes without having to lay down or passing out. I live outside of Boston, supposedly one of the best but just have gotten passed around. My latest doctor discharged me and said I was a 'psych case' I was like um so brain is telling my dura to tear and leak because its fun, no this is pure ****. I just wish this wasn't something that would repeat itself again and again...