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Old 04-27-2012, 12:09 AM
godmysaviour1 godmysaviour1 is offline
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Join Date: Apr 2009
Posts: 2
15 yr Member
godmysaviour1 godmysaviour1 is offline
New Member
 
Join Date: Apr 2009
Posts: 2
15 yr Member
Default Stiff Man disease or what?

Hunting for some insite, My husband is 47 years old in the last year he has became pretty Ill.His first visit started off with a bang of a long line of miss diagnois. He was seeing a orthopedic doctor and was to do a full back spinal MRI in MRI he suddenly could not breathe and had to be taken out which we now figure it was a anxiety attack. But we lost insurance and now he has been going to see clinic Doctors.

When we first went in we were glad to find out that he was seeing the head of the clinic for a doctor hoping finally to get some answers. He gives him IBS meds and Prostate meds for BPH,he went back three weeks later and let him know that it did no good. He then sent him to a Gastrologist.

This doctor decisded to do a EDG but he did not think that this was a gastrol problem he felt like it was a Arthitis problem or what they call Stiff mans Disease, this was the first we had heard of that, so he did the EDG and found out that he has GERDS but said that this had nothing to do with the pain that he is experience, he told me that he was sending a letter to the PC and letting him know that he thought he need to move quickly to find out what is going on he was in bad shape course letter never wrote. So we went back to PC and he says well everyting looks fine and then ask my husband as well as me do we exercise. Why me Crap if i know but as for my husband he can bearly stand.

I take a moment out of this story to list what my husband has experienced. He weighted before all this 149 to 153, is 6 11 he has always been a very healthy man. Now he bearly weights 128 lbs, when he trys to stand he says it feels like he is pulling a muscle in his abdomen, and it runs on both sides all the way around to the back. He walks leaning over to the front. He is lucky if he can hold down one meal a day. Has had blood work Urine test, MRI ( cervical was all that was completed has one herniated disc in c5) ultrasound of kidney pancreas, gallbladder, lungs all fine. He use to hunt fish, work long hours and now he only gets out of the bed to use restroom and that is all.

He is of course I beleive depressed and just recently went through a colorscopy testing bladder and prostate everyting fine. He has now given up seeing any doctor he said they dont know and dont listen to him so why should we pay for them to take our money when they dont give a crap to figure what is wrong. Sad part I know how he feels I was injured 12 years ago and went through 18 doctors, PT docs.

I refuse to give up and not figure out what is going on I have searched, it does seem he has this Stiff mans disease but I dont know I just have to think there is someone who has had the same problems and can maybe give some insite as to how they got doctors to listen because we are lost.

Would appreciate any help
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"Thanks for this!" says:
anon72219 (04-27-2012)