I am so sorry you are here and that you lost your daughter last yr. I am a mother to 3 teenagers that are all just driving, so scarey letting them go. The sooner after diagnosis the better your chances are of remission.

I have CRPS in my left hand/arm for 3 1/2 yrs now. It has cost me my job, career, gained 40lbs and so much more. I don't take "pain" meds but am on Lyrica, Cymbalta (yes-depression but also helps the nerve pain), Mobic (anti inflammatory) and Flexeril (muscle relxor for the horrible spasms). I have been through the nerve blocks, pulsed radio frequency ablation (made things worse), had a tens which did help, countless therapy-if you don't keep moving it it will freeze up. I did go through with the spinal chord implant. I had a trial first which will tell you if you are getting relief. I had the implant done a few wks after. At first I had about 70% relief and now it is 50% on a bad day and 70% on a good day. I have gone back to college full-time (so now I can also look forward to lots of student loan debt too). The spinal chord stim does help some of us, yes, some have had spread....everyone is differant. I just wouldn't knock it down quickly without talking to people that have had both relief and none, then make your own decision from there. Remember, they do a trial first.