I have CRPS in my left hand/arm for 3 1/2 yrs now. I have been through the nerve blocks, pulsed radio frequency ablation (made things worse), had a tens which did help, countless therapy-if you don't keep moving it it will freeze up. I did go through with the spinal chord implant. I had a trial first which will tell you if you are getting relief. I had the implant done a few wks after. At first I had about 70% relief and now it is 50% on a bad day and 70% on a good day. The spinal chord stim does help some of us, yes, some have had spread....everyone is differant. I just wouldn't knock it down quickly without talking to people that have had both relief and none, then make your own decision from there. Remember, they do a trial first. I waited a year before I finally told them to try it because I couldn't take what my life had become. Glad I did.
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Originally Posted by albrown3
I recently was diagnosed with RSD after almost two years of swelling, burning and skin changes after a Fire extinguisher broke my foot. I have had two nerve blocks that have helped but i had a nasty reaction to the steroids and it has spread into my leg. They are talking about a Stimulator amd I havent had time to process major surgery let alone the disease itself. I feel so lost!
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