Hello MrsD-

Finished my nerve conduction study this morning and was told me the neurologist that the findings indicate CMT. Well, that was a new one for me. He reviewed my file and said, WOW, you've had this going on for some time. Yes- 5 YEARS AGO I went to neurology for the same symptoms through the same HMO and nothing was done about it except to be sent to podiatry. He said my condition was carpal tunnel of the ankle. I really did not think that was the reason but gave up trying to get my HMO to do anything else. My symptoms have progressed significantly in the past year. Dr today asked if the labs were normal and I replied that five years ago my b12 was 416 (finally was able to access my online labs with my HMO). Oh that’s "normal" he said. My reply was not in some other parts of the world. Gee, he about lost it. Anyway, he would not discuss anything else, since he did not order the study, the primary care Dr. did and he would send the results to her. My question is, should I ask for updated b12 testing? And after some research, have realized that I should NOT be asking for nitrous at the dentist. Just had two dentist appt for a new crown and have used nitrous twice in the last three weeks at his office. That is when my lips started going numb. I am just really afraid that I will be labeled "CMT" and no further testing will be ordered. Any ideas? I cant tell you howl much I appreciate this forum. I have learned so much about b12 and CMT here already.

Sincerely,
Judiesva