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Old 05-02-2012, 06:46 AM
CRPSjames CRPSjames is offline
Junior Member
 
Join Date: Feb 2012
Posts: 94
10 yr Member
CRPSjames CRPSjames is offline
Junior Member
 
Join Date: Feb 2012
Posts: 94
10 yr Member
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Use extreme caution regarding suggestions of things to try. Massage and steroids in particular made me much worse as did lidocaine cream. Steroids increased spread for me. Warm water caused severe flares at one point.

It is in our best interest to think, not only about pain relief but treating the cause of the pain, brain dysfunction.

Most symptom treatments do nothing to stop spread of CRPS and in fact may cause spreads.

You can spend your lifetime and money treating flares and spreads.

My suggestion is to become your own CRPS expert. This involves an extensive commitment of time and energy in research. Part of that process is educating yourself about the mechanisms of brain reorganization and CRPS. All treatments involving CRPS and brain reorganization have minimal risks/side effects and target the cause rather than treating pain flares and spreads.

It is valuable to hear what others are trying but very risky to try something "ASAP" without first knowing the possible side effect that could make you worse.
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