we all feel your frustration, wish we could say for sure that it will change. I have had this since...(well my name says it all)2009 I still have moments of what??? whats going on.? we research our pain and infliction and over and over it boggles the mind. from one moment to the next I could,t tell you how I will feel what I can say is we all get it. little explaination needed. its a tough infliction indeed and we are here to help each other to learn to cope with this beast. god speed and soft hugs. I will keep you in my prayers.