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Old 05-03-2012, 02:26 AM
BethO2L BethO2L is offline
Junior Member
 
Join Date: Dec 2007
Location: Illinois
Posts: 89
15 yr Member
BethO2L BethO2L is offline
Junior Member
 
Join Date: Dec 2007
Location: Illinois
Posts: 89
15 yr Member
Default John

I realize that you are in London and some things there may be different so I hope I can give you a bit of advise.
As you say TN, does not go away however you seem to have a history of fairly clear remissions, so it may be hard to know what is really working for you and what may be just another stage of remission.

I would suggest a few things, first eliminate aspartame (equal), MSG, caffeine and avoid all tooth whitening products (use peroxide and baking soda instead). And if you smoke try to quit or move to the electronic smokes. Get back on the B complex not just B12 and stay on it, it helps repair damage to the mylean sheath around the nerve and it works.

Get good sleep and avoid stress,,that's just the quick basics. I can see that you prefer a holistic approach to treatment however that may not be the best approach..since you were diagnosed at an early age you have learned over the years that for you, periods of remission may or may not continue. The best way to control TN is to prevent it from flaring up. The best way to do that is with medication.

Again, we work in different health care systems however over the many years since your original diagnosis they have added many medications that you may not have as severe a reaction to. So going on low dose anti convulsants to prevent it from flaring is your best long term option unless you want to consider having a procedure done.

I am glad that you have found some relief with a homeopathic approach, but as this disorder continues it normally gets worse and that approach may not continue to be effective. I hope you continue to receive benefit from your approach but if it does not please remember that there are a lot of medications that you can try and you will probably find one that helps for the long term. Hopefully you will continue to have periods of remission most TN patients do not,,you are very lucky.

Since you are in the UK, you need to check the threads here on NeuroTalk, I believe that is where the post is. A company in the UK has developed the first medication expressly for TN and I believe that they will be releasing it in other European countries in 2013,,so you might want to look into that.
Here in the US we will not have access to that for another decade with our FDA regulations....

Look into it and let us know what you find out...Thanks and good luck
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"Thanks for this!" says:
Burntmarshmallow (05-21-2012)