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Old 05-03-2012, 12:34 PM
suev suev is offline
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Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
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I would highly recommend you go with the neuro-opt recommendation. Not all neuros think MG is 'real'...ie. it is often not their first dx...esp if blood tests and SFEMGs don't support the dx. Your neuro-opt must have confidence in this guy ...maybe even has some working relationship with him.

And if you try this doc and don't like him, his approach, etc. - you can always get a second opinion.

Whatever you decide, get an appointment soon. Neuros may have many weeks to months on new patient appointments....and MG can sneak up on you sometimes with surprising speed. Any swallowing issues must be taken seriouosly - esp when you have no medication (Mestinon) on hand. Watch for choking and shortness of breath. If it were to become difficult to expand lungs for air (like you feel it's requires effort), go to emergency room.

In the meantime, be aware most MG'ers find summer the most difficult time of the year. Under no circumstances should he get overheated....really makes us weak! Whatever you decide, please get an appointment soon. MG never waits 'until its convenient'!!

Good luck ... hope all goes well.
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