I have also tried hyperbaric oxygen treatment 80 one hour treatments at either 1.5 or 2 ATA.
I think that it helped me and there is even some recent evidence from a clinical trial:
http://www.hyperbaricmedicalfoundati...rchJan2012.pdf
I was advised to do the treatment without too much time in between treatments in order to get a cumulative effect, preferably 5 or 6 times a week. I actually only managed 3 or 4 times a week and felt that that was enough for me.
Linda, I see that you were only trying twice a week. This may not have been frequent enough to get the best effects. I do completely accept that different things work for different people, but perhaps your daughter might benefit from trying again, doing the treatments more frequently. I was lucky in being able to get HBOT at a much cheaper rate than you were paying, but I do sympathize with the expense. However, 40 treatments five times a week might be better than 40 treatments twice a week.
I know that you said that you didn't see any benefit. But it is perhaps difficult to know what a 13 year old girl is feeling. Younger people are not always quick to express what they are feeling to their parents, particularly if they have had a brain injury. It would be hard for a parent to know whether or not a treatment was of any use. The communication part, at least, might be better now that your daughter is 18.
All the best to you both.
CS
Quote:
Originally Posted by LindaMartino27
Hi,
My daughter's injury was in Jan 2008 at age 13. She did oxygen therapy in Nov and Dec 2008. She did 40 treatments - 2x per week. We spent $7,000 on this. I did not see any improvements. The doctor wanted to do another 40 but I just could not justify that money.
It wasn't until March 2010 when we did QEEG guided neuro-feedback with Dr. Walker, a neurologist, in Dallas, TX that we have had significant improvements. She completed 212 treatments in Dec 2011 and she has had no more seizures, no more fatigue, less headaches, less severe headaches and recovers faster. She can tolerate noise for about an hour before she gets a headache. She can now read for 20 minutes 4x per day. So she is still very limited but life is more bearable. She just started vision therapy and that is spiking migraines. It is hard very hard to see her like this she is 18 now. She missed high-school. I wish I had better news.
I'm would like to try acupuncture I've heard several had improvements with that. Dr. Bynum in Dallas, TX had a TBI and she became an acupuncturist because of it. We did meet with her when we were in TX but my daughter doesn't feel comfortable with the needle idea.
Our neuro-psychologist recommends osteopathic treatments - cranial sacral but that really set off a terrible migraine.
Everyone seems to get help from different treatments. Don't give up. I'm not. Magnesium helps her.
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