Quote:
Originally Posted by Anacrusis
Hi...Totally understand the frustration. I don´t have a single positive test and my experience with doctors felt like a comic strip in medicine until I found a neurologist that actually made a fine art of it ☺ ………......
DIAGNOSIS May 2010: M.E
DIAGNOSIS January 2011: Chronic fatigue
DIAGNOSIS February 2011: Psychosomatic something or other
DIAGNOSIS March 2011: Fibromyalgia
DIAGNOSIS April 2011: Suspected lyme disease
DIAGNOSIS May 2011: Psychosomatic fatigue syndrome
DIAGNOSIS Sept 2011: Suspected Myasthenia Gravis
DIAGNOSIS Oct 2011: Seronegative Myasthenia
Whilst my trunk muscles were weakening as the evening progressed I would start to fall forwards into my dinner plate and have less and less power to cut through the food and I enjoyed those first few bites so much because I knew at any minute the chewing would stop. Well the doctor seemed more worried about my eating habits than my muscles!! And a doctor´s assistant once even suggested I was just going through an early menopause…..and so on......
Look forward to read good news about all those procedures hopefully sometime very soon ☺
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Thank you so much for your kind words. Would you believe that I actually asked my husband if he thought I was crazy? I guess if you hear it enough you begin to second guess yourself.
I went through years of false diagnosis with my heart condition, until I stumbled upon a cardiologist who was actually thoughtful and good. I didn't even want to go to the appointment, but I'm glad I did.
In all honesty, my symptoms seem to align more with MS than MG, but the eye droop cannot be ignored. I would love it if a neuro could confirm that my stroke was related to a disease instead. So much was taken from me due to that diagnosis. Does MG cause brain fog? I don't know if I experience true weakness, as my legs sometimes buckle when standing, and I don't know if that is something any of you experience.
Whatever the case, I meet my new neurologist in 2 weeks, and I am praying that I can get answers.