Quote:
Originally Posted by AnnieB3
TriHead, As soon as you get a diagnosis, I'll give you some recommendations. Tell me if you live closer to St. Paul or Minneapolis. I don't know anyone who wants to have an ongoing neuro from Mayo - it's too far to drive for most MGers!
I hope you get answers soon.
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Thanks Annie. I will be at the U on Tuesday for the SFEMG. The only noticeable symptoms continue to be the droopy eyelid and double vision. Both of which are manageable. I have lightened up my physical activity but still am able to go for a 3-4 mile run without any issues. Working on getting more rest this month (although difficult with three kiddos including a 5 month old).
I have my follow up appointment on the 10th with my neuro ophthalmologist. Double edged sword on whether to pray for a diagnosis but would like to be able to at least "name" what I am dealing with.
Thanks again for the support. And got the notes on the SFEMG prep: get off Mestinon for 24 hours, well hydrated and stay warm (although with weather like this, that won't be hard).