Thread: So sad...
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Old 05-04-2012, 11:04 AM
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Judy2 Judy2 is offline
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Judy2 Judy2 is offline
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Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
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Ahhh Eric....you made me get all teary eyed....in a good way. Your compassion is over-whelming. This is why NT is so valuable to "people like us", being able to relate and encourage others in the same boat. Thank you, thank you, thank you. Please try not to stress out too much about what might happen in the future, easier said than done, but keep in mind I've had this monster for thirty-six years and it's just been the past four or so that things have gotten bad. It's really not worth using up your energy worrying about something that may never happen. Medicine was different "all those years ago", no DMD's, not even MRI's. As the saying goes, "It is what it is" and basically we just have to try and cope (sort of) with "it".

I pray that you will have a smooth ms journey. As for me, things are looking up. It's mostly the frustration of not being able to do the little things I used to take for granted. Also looking forward to the clinical trial beginning in July for something that may help with the nerve pain. Think that wears me down more than anything........now that I've had right from the get-go. And the bladder issues....having a permanent catheter implanted is sounding better all the time.

Again, thank you so much for your compassionate reply. You have such a sweet spirit.
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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"Thanks for this!" says:
SallyC (05-04-2012)