I *totally* understand.
I try to think of it as a "pause" or "limbo" in my life; something I have to deal with until I can well enough to be able to get on with my life.
I'm very disappointed that the medical field can't offer us more. But, I'm sure many people who deal with serious afflictions feel the same way. At least our conditions aren't terminal.
Sometimes, I daydream about the 24th century (think: Star Trek) and that if we were alive then, that our concussions could be resolved instantly with the wave of a tricorder.