It is very hard to find specialists for this disease. You may have to travel. I live in Indiana, and so far can't find one. You are fortunate that your daughter is in the Earl stages. She has a good chance at remission with the right care. A neurologist will be helpful and can help you with your search. In the meantime, keep the faith and do your research. There is a ton of info out there. It is awful to see your child in pain. I feel for you.