Originally Posted by Joydee

Hi,

You have found the right place for information and some truely caring
folks. I do not have CRPS personally. My adult daughter developed
it in late 2008 after surgery to her hand and arm. It was the
oppostie for her when it came the surgeons. Her surgeon believed
it was CRPS within a couple of months. She found a PM doc who
did a SGB on her but he did not think she had CRPS. Many Docs
reley upon SGB responses to confirm CRPS when in twenty five percent
of the time there is no response. Such was the case here, as a result
it was a touch over a year before confirmation was made and precious
time was lost.

I am sorry to hear few within your circle understand. This is common
and only education over time can bring understanding. Sad to say the
same thing can be said about some of the doctors who treat CRPS.
I am curious. In regard to your consideration of SCS. Please type
in TDCS in the search menu of this site. There is a very long thread
regarding TDCS. TDCS is non invasive and targets the problem, not
like other treatments which mask the problems. We are taking steps
to try the treatment for my daughter.

Meanwhile keep the faith, there is something out there for you
and new treatments are occuring at a faster pace. Most important
know you are not alone.

Joydee