[QUOTE=Sophie_;877676]Hi Gerry,
Thank you for such kind words and I think Karen will be pleased with the sound advice you posted earlier.
I'm to meet a surgeon next week to discuss my options. I have tons of pain at the Sacro iliac joint, lower back into my bum, my hips hurt like hell and my left leg burns and throbs and is numb in places. For a long time they couldn't find what was causing my pain until the last MRI Scan I had which showed at least two disc protrusions and a whole lot of scar tissue pressing on the S1 nerve root and it is this scar tissue that next to get sorted. I'm desperately praying that the surgeon will agree to help me in some way as many have said no. Of course I had to have my SCS removed so I could have MRI and other tests but I imagine my pain Dr will agree to put another in. I still have the battery in from the last one.

How about your status, you've probably posted it already like me but I missed it. I hope your pain is manageable, I'm on so many strong meds and I hate them.

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Sinéad....I did it...Yea !!!!!

I had spinal fusion, badly crushed nerve, and a laminectomy about 5 1/2 years ago. Still had considerable amount of pain. Eventually went to Pain Specialist. Of course, one of the big side effects is constipation. Didn't realize a woman who had a complete hysterectomy could push bladder out. This required Cystocele Surgery (bladder put in mesh sling) (in 2008 FDA warned doctors not to use mesh in that area for women). Within two weeks after surgery, developed severe swelling, edema of legs, ankles and feet. Take meds daily to control. Also at that time, my ankles, then feet started discoloration and lesions under the skin. Found out that is Statis Dermatatis. Those lesions can become ulcereated. This stops at the knees. So far, i am up to the knees. With all of this, periphereal neuropathy, from the waist to the toes developed. Much pain in the legs, feet and ankles, a lot of burning.

Then to top it off, when the bladder is placed elsewhere, the small bowel comes down causing a Rectocele. Had that surgery done as well. Three urogynocologist said this should not have been necessary. First, my urologist, who did the Cystocele should never have used mesh, then second...the wall should have been reinforced so as to prevent a Rectocele from happening. Rectoceles have a tendency to return. With my using such a high dose of narcotics, it has already started to return.

But getting back to your S1 scar issues. My Pain Specialist did many procedures in day care and the last being a precedure to remove any scar tissue in the S1 area. Unfortunately, this was not the problem for my pain and did nothing in my case. The procedure was next to painless. Just hope this can be of help for you.

Take care and glad we're friends,
ASAP (Always Say A Prayer) for you,

Gerry