But you are right, Peggy. There is a great need for something to happen. PWP, care-givers, doctors, scientists, generous selfless volunteers working for free and greedy financiers looking for 40% profit, and academic researchers, and PD orgs, - all of them have a role to play in comforting those who have the disease now, and killing the disease so the next generation won`t have PD, and a few generations after that, no one will even remember what Parkinson's was.
And there is the world. We keep hearing about the FDA and Merck and NIH in America, but lots is going on around the world. China, for instance - some unofficial estimates project the China's aging population will have 30 million PWP - they have built the largest sinemet factory in the world, are pouring money into medical research of all kinds, and are opening PD clinics at a fast rate, and they intend to become a major force in medical research and medical methods, products and drugs.
There is also a fair amount of PD activity in the U.K., Australia, Canada, etc. and in Europe there is research - and in northern Europe the care and concern towards PWP is remarkable
But how to get the whole thing working for a common goal, even if that is the only thing they have in common...
How even to get more people writing and reading Neurotalk?
How to get researchers to share their findings? The list is long.
And the Baby Boomers are just starting to show up at the PD clinics. There will be millions of them. Nobody is ready for them. They are the ones who may make a big difference. A lot of them have rabble-rousing experience. Someone needs to warn them to not do what I have done - getting too soon old and too late smart.