Welcome to NT...lots of info, support, laughs and hugs here...
I'd ditto the above advice. It took many of us YEARS to get an answer to all of our strange symptoms.
As noted above, write symptoms down with dates of onset and dissipation. Also, write down questions you have for any docs you see. And write down their answers. Many of us forget what to ask or what's said in the exam room.
Don't listen to your "friends"...listen to your gut. Try to be patient...and always try to find good doctors. You have to be your own advocate...don't be afraid to confront docs with your doubts!!
Keep us informed about what's going on...