Laura
You always come up with some extremely thought-provoking comments. And most of the time, they are both valid and reliable. I think we need a totally redesigned approval system, along with a pressing move to get experienced patients a place at the bargaining tables of important stakeholders.

I believe the research world would be amazed at our experiences, capabilities, and knowledge. We have much to offer (and our services are cheap!). I am not sure which group you mean in your comment about a newer group who has done lots of surveys. Can you message or email me with more specifics before I comment here?

You are a well-read and prolific writer. You could help in that capacity . So when and where do we sign up?
Peggy