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Old 05-10-2012, 07:09 AM
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
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catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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Hi Richard. I'm sorry to hear what you are going through. Doctors...sometimes you just want to smack them for their incompetence when it comes to RSD. I think your first order of business needs to be to find a doctor who specializes in RSD. Not just one who may or may not know what it is, but who actually specializes in it. There are some links at the top of the forum in a stickied post that you might find helpful as resources. If you tell us where you are from, some members may be able to help you find a good doctor in your area for RSD. You can also do a search here on NT because you'll find many posts where people were looking for doctors in a particular area and one of those may have some helpful information too.

Your new symptoms could definitely be connected with RSD...especially if the doctors can't find anything else to explain the problems. But you really need to see a doctor who specializes in RSD to be sure. If it's RSD, then the "throwing pills at it" method doesn't really work...as I am sure you know quite well.

In the mean time there's really not a whole lot I can recommend other than dumping your current doctors and getting to one who knows what's what. I know it's not much but I know that taking hot baths with epsom salts helps me, as well as an ultrasound heat therapy treatment right after the bath and then using a TENS unit (both of these devices can be ordered off of amazon.com if you are interested in trying them). Just be cautious with any treatment because what helps one person and cause problems for another. I don't know if you are in any physical therapy but this would be a great place to request trying TENS and ultrasound to see if they work.

And remember...immobilization and ice are two of the worst things you can do for RSD. So make sure to keep trying to move that leg even if it's only a little bit. I don't know if what you have is RSD but if the other doctors don't have any other answers for you then it could be. Get to someone who knows what they are doing with RSD before you get any worse.

Take care...and if you have any more questions please post them. Everyone here is very helpful and I have learned so much on here from others. Just remember that what works for one person doesn't necessarily work for the next. We are all different and respond to different meds and treatments...which is part of why so many doctors struggle with RSD...it's just so WIERD...
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"Thanks for this!" says:
AintSoBad (05-10-2012)