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Member
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Join Date: Sep 2006
Location: Australia
Posts: 660
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Member
Join Date: Sep 2006
Location: Australia
Posts: 660
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Please post if you are JC+
Hi everyone
I have just found out I am JC positive, and I don't know what to do. I am up to three-and-a-half years on Tysabri. I don't want to change meds because Ty works so well for me - but the alternative (PML) is pretty scary.
I gave up after 8 miserable years on Beta, and for some reason I find the thought of Gilenya really scary (I already have low platelets, and fear that they will be brought down as well as my white blood cells - plus, I work in a classroom where I can't control their coughing/sneezing, colds and flu).
I really need to get lots of info, and lots of opinions on the best course of action for me so all input would be greatly appreciated.
Thanks so much
Lyn
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Lyn .
Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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