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Old 05-11-2012, 02:01 PM
ballerina ballerina is offline
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Join Date: Feb 2011
Posts: 393
10 yr Member
ballerina ballerina is offline
Member
 
Join Date: Feb 2011
Posts: 393
10 yr Member
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So much good news, I don't know where to start!!!!!!

Great news Joydee!!!! I know what a struggle it has been to get all of the schedules straight for your trip to see Dr. Fugedy.

More news! Mike asked me to let everyone know that he has been MIA due to being without a computer but wanted me to let everyone know that he has recently begun tDCS and after only ten days the edema which has plagued his ankles for years is gone!!!!!!!! He is thrilled beyond words. I am just as excited given what he has been through over the years. Mike is another example of Old and Cold CRPS responding to tDCS. He is taking a temporary break while he irons out some equipment issues but expects to be up and running again with tDCS treatments very soon. His success reminds me of my first experience with tDCS and the decrease in swelling I have by the fifth day. I remember thinking that just that symptom relief alone was enough.
(Yes Catra, you bet I have become greedy)

My good news is nothing short of amazing also. I was recently bitten by a tick right on one of my surgical incisions. The bite became angry and infected BUT CAUSED NO FLARE!

On Wednesday I took a severe fall into a closing elevator door which got me squarely on my bad shoulder. I have a nasty bruise, BUT IT CAUSED NO FALRE. I have had no flares whatsoever for almost five weeks. It used to be that the slightest air movement, even the AC coming on would send me into orbit for a day or two. A minor injury like a paper cut could sack me for two days.

There is no question that the inflammatory CRPS response which used to be cranked up by anything is becoming harder to awaken due to tDCS.

In the past the longest I went without a flare was several days. Major flares occurred with the slightest provocation.

I am still taking anti inflam meds and I am on a regular routine of anything that addresses brain reorganization.

I no longer wear my night guard since teeth clenching is a thing of the past. I sure wish I had known about tDCS before the teeth clenching cracked a tooth necessitating a root canal which ignited a new area of CRPS.

By the way. For those of you who avoid anything invasive if you get a tick bite and are worried about having to take anibiotics with a followup blood draw to check for tick bourn illnesses I have a solution. I mailed the little sucker off to a lab and had it tested. Lucky for me the test was negative, no drugs or blood draws!

If I can only lick the balance problems. Although my balance has improved I am still at risk for serious injury. When I fell into the elevator door I even had my service dog with me. I have less falls or near misses when she is with me.

I don't go out much because of falling issues. I am currently researching tDCS and falls to see what I come up with. I am also looking at research pertaining to transcranial magnetic stimulation to see if I can apply anything contained in that research to tDCS.

CRPSJAMES is also doing research in the same area. Is anyone else researching tDCS and balance. Please share if you find anything promising.

We are learning the positive effects of tDCS on treatment resistant CRPS and Old and Cold CRPS. How thrilled I would be to see someone who is newly diagnosed try the treatment and go into remission.

If you have tried tDCS and are newly diagnosed please share to help others.

I am so overjoyed that I have found a treatment that has been scientifically proven to be safe and effective, has no side effects, cannot be effected by tolerance levels, is cheap, address the root cause of CRPS, not just covers up the pain, is painless, addresses not only the pain but dozens of other symptoms and sensations associated with CRPS and is inching me toward remission. If anyone had asked me two years ago where I though I would be now I realistically would have answered that I would probably be in a wheelchair and or addicted to narcotics as well as experiencing spread of the condition or full body CRPS.

I don't know what the future brings but I can only hope I will never take narcotics or pain medications again.

Better days are ahead for all of us!
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"Thanks for this!" says:
catra121 (05-12-2012)