My pain is typically on the right side just behind the ear and around that area. What I experience is "knife stabbing" pain every 30 seconds to a minute. The pain is absolutely excruciating. The bout lasts anywhere from 3-10 days. It is the most awful thing to go through. As well the right side of my face is very sensitive during this time. When I was diagnosed, I was told that there are no "tests" that can diagnose this, it is diagnosed solely through symptoms. I'm not sure if things have changed now though. It's something that to my knowledge doesn't have a cure and is something I have to live with for the rest of my life. Fortunately, the bouts come randomly, about once a year, although this year I have had it twice already. I wish you luck.