He is not nearly as incapacitated as many w/CIDP. I've kept fighting but I keep falling and have to say off my feet each year for two-month stretches...it's hard and dangerous starting over. My PN/CIDP is up to my 'seat' on my legs and almost to my elbows on my arms. The balance issues and the pain at times is not something I speak of often.

I have to admit tho, that the fact Alan is ABLE to work out, and walk without a distinct funny 'tilt' is extraordinary. His own instincts in this quarter, are holding him in very good stead and definitely keeping him out of a wheelchair. I am no longer really able to 'do stairs' now, and I bet you are on the second story. I have to admit I am jealous.

Don't forget that there are at least 2 dozen autoimmune neuropathies and the list grows yearly... I don't know if the powers that be are lumping new 'unknowns' into the CIDP category or not. Little research is being done in this quarter, at least, in the US.

Tell him to keep doing what he's doing, he will beat the odds for sure! - j