Mariel I'm glad to share my own experiences (I'm glad you're happy to read them - I blab and blab, often too much for my own good, or the good of those around me!).

I'm sorry to read that you're dealing with 2 conditions at once. It's one thing to deal with cruddy MS, but to deal with Polycythemia Vera (I am completely ignorant to this disease/syndrome - I'll have to educate myself) as well, that takes one tough and brave soul, from what little I have read from your post (sensitivities and such). Wow.

I do hope your son can slow down for you and begin to learn how to accommodate at your pace better. I think he'll learn with time what works best for the both of you by the sounds of things.